The MSS CKD Pilot has been designed to help young adults with kidney disease learn new skills, secure access to certificated outcomes and progress in life. You will take part in a DofE Bronze award that covers skill development, volunteering, a sport and an exicting overnight expedition. During the skills section you will have access to the latest technologies, such as flying drones and learn skills to help you lead a healthy lifestyle, such as low potassium cooking and employability skills such as cv writing and presentation skills. Working with our team you will also plan and take part in an overnight expedition.
The process starts by you registering your interest with us. Click here to start that process. Once we have recruited all the participants we will work with you individually to understand your development needs, plan sessions, and to hold a formal launch where you can all get together. We expect the launch to be in May/June subject to meeting with you all individually.
DofE Bronze Award
We are pleased to announce that we have 10 fully funded scholarship places available for young adults aged 18-24 who live in Brighton or the South East of England to particpate in a DofE Bronze Award. Please click here if you would like to register your interest.
Read below to find out more about this exciting pilot and the programme sponsors. On completion of the pilot we will be rolling the programme out across the UK and Europe.
We would like to thank all of the sponsors and funders who have contributed to launching this programme
A word from our sponsors
The BKPA are delighted to be working with MSS CKD and the DofE award to develop and deliver an accredited skills development programme to aid young peoples transition to adulthood. We believe the programme will play an important role in helping young people with kidney disease develop the confidence, skills and ambitions to improve their life chances
The MSS CKD initiative to provide training and encouragement to young kidney patients is warmly welcomed by SEKPA, the South East Kidney Patients Association
The Tim Lewis Trust is proud to sponsor MSS CKD and the DofE award. This is a unique programme offering amazing challenge and learning opportunties to kidney patients. Tim, who suffered from kidney disease himself , would have been proud to be associated with it and would have particularly liked the VR drones
Netitgate is proud and grateful for the opportuntiy to help with improving the lives of people living with chronic kidney disease
Matt has been a strong supporter of young people over his expansive career. He holds an MA in Outdoor Education alongside numerous high level outdoor qualifications to lead groups in adventurous environments. He has trained and assessed Gold Duke of Edinburgh Award Expeditions in both the U.K and abroad. A passion for adventure education means Matt has experience of adventurous travel, teaching and leading in diverse environments from across the globe, ranging from the Scottish Highlands to the Himalayas, Sub-Saharan Africa and the Australian Outback to the Canadian Rockies.
Matt employs his qualifications in coaching and positive psychology in his work supporting organisations and individuals. Alongside his role with MSS CKD Matt also holds voluntary posts as a Trustee for the Institute for Outdoor Learning and is a committee member of the Adventure Activities Industry Advisory Committee (AAIAC) set up by the Health and Safety Executive to support safe practices in adventure activities.
Matt is passionate about the work of MSS CKD to make significant differences for all people involved in critical healthcare services.
Meet Matt our Ambassador and Advisor
" I am delighted to have joined the MSS CKD team as we design and develop an exciting and innovative new social enterprise and consultancy focused on improving patient’s lives. The ethos and mission of MSS CKD aligns very much with my passion to empower and educate kidney dialysis patients, drawing on my own long-term experiences on home dialysis".
Maddy is a veteran of dialysis having just celebrated her 18 year anniversary of dialysing herself at home. She considers herself to have had a happy, healthy and completely normal life despite going into kidney failure at the age of 14, because she has always been empowered to manage her own care and is able to do at least 40 hours haemodialysis treatment each week while she sleeps. She is involved with MSS CKD because she is passionate about changing the lives of kidney patients, particularly young adults, and trying to create opportunities for others to get their lives back on track, with the philosophy of dialysing to live not living to dialyse.
Maddy has been a Trustee of Kidney Research UK and a lay advisor to the London Strategic Clinical Network for Renal Medicine, the Kidney Health 2032 Future Strategy Initiative and the Guy’s & St. Thomas’ Renal Project Board Steering Committee. She is a self confessed adrenalin junkie who loves skiing and horse riding and is obsessed with skydiving, having completed her solo and formation skydive licenses and 300 jumps (so far) out of perfectly good aeroplanes.
Meet Maddy our Patient Ambassador and Latest Recruit
International Kidney Patients
If you are a young adult kidney patient aged 18-35 and living overseas please contact us to find out more about our international training opportunties and residentials
MSSCKD utilises the latest technology to enable participation and inclusion for medically excluded patients. We utilise VR drones, AR tagging and medical wifi devices to embed technology in programmes to help participants understand how to manage their lifestyle, monitor their medical condition and access information in an understandable and meaningful manner. Click on the video link to see the types of tech we use.